When
Is It Time to Make the Move?: One Patients Perspective
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This letter was written by a man with Alzheimers disease
several years ago. He gave it to his family and also gave
permission for it to be shared with others who might find
it helpful.
He wrote:
At some point during the further progression of Alzheimers
disease in my life, my wife and grown children will probably
have to consider placing me in an assisted living facility,
nursing home, or convalescent center.
Today, while I still have cognitive ability, I want to provide
them with my opinion regarding this matter.
My dear loved ones:
You are forced with making a decision you would rather not
make. I understand and have come to know that, at times, love,
does indeed hurt.
You love your father as I have loved you. We have grown to
respect each others opinion, even when it is contrary
to our own.
And, if I can no longer speak in the future, you must know
that I would always want to be home, here with your mother,
here with the love I have come to know and derive comfort
from. And, yet, even as you have known me, you must realize
there are health concerns which must be placed at a higher
priority than love.
There are two significant advantages, which come to mind,
that assisted living facilities, nursing homes, and convalescent
centers generally offer over what care can provide. These
are:
1. 24 hour a day medically trained staff.
2. Programs designed to stimulate our minds and the exercise
of our physical bodies.
You see, my grown children, even if you offer your mother
your help to keep me home, just a little longer, you are only
deferring an inevitable decision.
Please place me in a long term care facility when either of
these two situations arises:
1. When you see stress building up in your mother. When you
may observe signs that her mental and physical well-being
are suffering because of the care she is trying her best to
provide to me.
2. When my own physical and mental well being dictates assistance
provided to me beyond what any one person at home may be able
to offer.
At times, love may require self-sacrifice. I love you and
your mother and do not want my situation, which is something
bad, to become something worse.
Helen Keller once wrote:
I am only one; but still I am one.
I cannot do everything, but still, I can do something.
I will not refuse to do something I can do.
You love me. You will do as I ask, even if it hurts. Sometimes,
love is this way.
My dear ones:
Let me do something I can still do.
When the Questions are too BIG and the Answers
too small call the ALZCARE People: 1-866-ALZCARE
(1-866-259-2273)